This baby has harlequin ichthyosis, a rare skin condition

harlequin ichthyosis – this is extremely rare, but the scaling is severe and requires intensive care at birth ; syndromes that include ichthyosis – such as Netherton's syndrome or Sjögren-Larsson syndrome ; Congenital ichthyosiform erythroderma. Ichthyosis may develop if a baby is born with a shiny yellow membrane (collodion membrane) that ... Expatica is the international community’s online home away from home. A must-read for English-speaking expatriates and internationals across Europe, Expatica provides a tailored local news service and essential information on living, working, and moving to your country of choice. With in-depth features, Expatica brings the international community closer together. We would like to show you a description here but the site won’t allow us. NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases. § Previously called ichthyosis hystrix. There are many other rare types of ichthyosis with defined gene abnormalities and clinical features. What are the clinical features of ichthyosis? Ichthyosis varies in appearance and severity depending on the cause and the effect of modifying genes. Ichthyosis vulgaris. The skin may appear normal at birth Harlequin ichthyosis is a severe genetic disorder that mainly affects the skin. Infants with this condition are born with very hard, thick skin covering most of their bodies. The skin forms large, diamond-shaped plates that are separated by deep cracks (fissures).

2021.12.02 22:00 Msmeowkitty This baby has harlequin ichthyosis, a rare skin condition

This baby has harlequin ichthyosis, a rare skin condition submitted by Msmeowkitty to MakeMeSuffer [link] [comments]

2021.12.02 22:00 Illustrious-Pop-348 not detroit related by if y'all need some of these tap in i got bulk vanilla backwoods

not detroit related by if y'all need some of these tap in i got bulk vanilla backwoods submitted by Illustrious-Pop-348 to CrimeInTheD [link] [comments]

2021.12.02 22:00 thats_pretty_epic02 I know who I am now.

I know who I am now. I've been lying to myself all 18 years of my life. I have been suppressing my feelings and hiding my true self for my entire life.
I grew up in an extremely transphobic religious atmosphere of Catholic schools and family. I was bullied, depressed, and often suicidal. I had to suppress who I genuinely am.
This is the very first time I've ever felt an understanding of who I am. I understand why I am the way I am.
I've got a rough road ahead of me, but I hope I'll make it.
Did anyone else feel this way?
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2021.12.02 22:00 EPA_XD What do you guys think of this new name?

What do you guys think of this new name? submitted by EPA_XD to tf2 [link] [comments]

2021.12.02 22:00 helplesshope .

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2021.12.02 22:00 thejiggler102 HODL

VERTcember is just getting started! Don’t blow your load to early, and let the coin pump!
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2021.12.02 22:00 strategolegends Ideas for cookies involving fresh strawberry juice and white chocolate

I was thinking the other day about white chocolate-covered strawberries, and had the idea of trying to put it into a cookie form. My idea was to blend the strawberries in a food processor and strain the juice from the seeds through cheesecloth, then add the the dry mixture. Initially I had the idea to add in melted white chocolate, too, but going back to the original idea of the chocolate-covered strawberries, I think it'd be better to dip the cookies after baking. I don't know where I would go about finding a recipe like that, or what subreddit I could go to to discuss the idea. If anyone here has any idea on how to make this recipe work, or where to go to discuss this with people, I would appreciate it.
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2021.12.02 22:00 Otherwise_Ranger_686 Join the 🍑 My Nudes Discord Server!

Join the 🍑 My Nudes Discord Server! submitted by Otherwise_Ranger_686 to SofiaspamOF_NOSPAM [link] [comments]

2021.12.02 22:00 Regime-leader Spider-Man done now its back to just doing daily’s again while i wait for my favorite character arrive

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2021.12.02 22:00 TheRedSam1 Chat be so fcking weird sometimes 4K
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2021.12.02 22:00 rainingtigers Where can I buy willow leaves that's safe to feed my bunny?

My one rabbit is super super picky. He refuses to eat any kind of treat or fruit I offer him. I found out he LOVES willow leaves, but I can't seem to find them sold anywhere online. I'm located in the US if that matters
submitted by rainingtigers to Rabbits [link] [comments]

2021.12.02 22:00 EfficientDesign3123 The Design and Working of Vacuum Transformer Oil Purification Plant

The design of the Vacuum Transformer Oil Purification Plant has the characteristics of small size, light weight ratio, convenient movement, low noise, long continuous working time, stable performance, and convenient operation. It is an ideal Oil Purification Equipment for power industry, manufacturing plants, industrial and mining enterprises to filter water, gas and impurities in transformer oil, insulating oil, dielectric oil, cable oil, switch oil, etc.
The working principle and purification process of Transformer Oil Purification Plant:
When the oil purification equipment is working, the oil enters the primary filter through the inlet under the effect of the internal and external pressure difference, and the large particles are filtered out. After the oil is heated by multi-stage infrared rays, it enters the special personalized vacuum separator and separates in the vacuum. The device is first formed into a slender shape, and then a film shape, so that the contact area in the vacuum is enlarged hundreds of times. The water in the oil can be quickly obtained under the conditions of high heat, high vacuum, large surface, and high pumping speed. Vaporized and discharged from the vacuum system, the water vapor discharged from the upper part of the vacuum separator is first cooled and dehumidified by the condenser, then enters the cooler to cool again, the condensed water enters the water reservoir and is discharged, and the gas after being condensed and dehumidified twice, finally It is discharged into the air by the vacuum pump.
The dry oil in the vacuum separator of Oil Purification Equipment is vacuum vaporized and dehydrated, and the oil pump is increased from negative pressure to positive pressure. After filtration, the net oil is discharged from the oil outlet to complete the entire net oil process.
The Transformer Oil Filter Machine is mainly used to increase the insulation value of the transformer insulating oil during the process of injecting new oil into the transformer. The transformer insulating oil in the oil tank enters the transformer after being filtered by a vacuum Transformer Oil Filter Machine and degassed and dehydrated. The transformer vacuum oil filling is a separate vacuum pump device that vacuums the transformer at the same time to obtain the best effect.

  1. If the distance between the oil tank and the vacuum Transformer Oil Filter Machine is far, an oil filter press plays a role in filtering and pressing.
  2. When the Transformer Oil Purification Equipment is used to purify and filter the used transformer insulating oil on site, an online or offline cycle purification method is adopted.
  3. When there are multiple oil tanks on site, oil can be filtered between two different oil tanks to achieve the purpose of improving oil quality.
  4. When there is only one oil tank on site, an Transformer Oil Purification Plant can be used to circulate the oil inside to improve its oil quality and facilitate the oil filling of the transformer in the next step.
submitted by EfficientDesign3123 to acoreoilpurifier [link] [comments]

2021.12.02 22:00 NeonPerplexion (CAN) Bought my first condo, didn't get around to insurance

So I bought my first place and it was a very quick process where closing was just a couple weeks from the offer so between being busy at work, organizing the move and meeting with bankers/lawyers/etc I forgot to get my condo insurance.
Called TD which I understand is one of the big insurers in Canada and they said they can't even insure me since I'm already living in the place and they can only renew/switch coverers when this is the case. How screwed am I? Is this just an issue of having to pay more to someone specialized or will I have trouble having anyone even consider insuring me?
submitted by NeonPerplexion to Insurance [link] [comments]

2021.12.02 22:00 coffeeneyeliner Good news at fetal echo

My husband and I both have CHD (two different ones) and we’re expecting our first child in April. We knew going into this pregnancy that our child would be at slightly higher risk for CHD. We had our fetal echo today and so far everything looks normal! Now we can breathe again! One question remains: what on earth will we do with a kid that can run and jump and play?!?
submitted by coffeeneyeliner to chd [link] [comments]

2021.12.02 22:00 pardonmynarcolepsy Where does everyone buy their miners from? And what currency/method of payment do you use?

Im speculatively looking at purchasing a Kadena miner and Im having trust issues trying to figure out which websites are legit and which ones are not. I found a website with decent prices and a waiting list but i'm afraid they are going to take all my money and run. Im planning to pay with USD idk if thats smart or not. Your guidance or referrals are appreciated.
submitted by pardonmynarcolepsy to kadena [link] [comments]

2021.12.02 22:00 Comfortable_Rice_393 Tonight‘s lines changes on the second line

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2021.12.02 22:00 ramon556 Need some info!! Beretta 1301

What’s 922r compliance?! I want to buy a beretta 1301 marine. I also want to buy a gg&g magazine extension. As well as a loading gate. Do these things make the shotgun legal or illegal? I didn’t hear of this till now. I also see 1301s and benelli m3/4 with what looks like full length magazine tubes. Can someone shed some light? I’m new to the semi auto shotgun world.
submitted by ramon556 to Shotguns [link] [comments]

2021.12.02 22:00 surferwannabe If you testes positive for COVID within 3 months of travelling to the US, did you have to take a test again?

(Copying most of what I wrote in another thread)
Flying to Florida from Canada at the end of December to finally see some family. However, I tested positive for COVID back in mid- October and I was told by health officials it'll be about 3 months before the virus completely sheds from my body. By the time I travel, it's still within the 3 months and I was also told that if I were to take another test, it'd most likely test positive.
With Biden's new rule that requires all International travellers coming into the US take a test 24 hours prior to travel, I'm worried a rapid test will show as positive and I'll be restricted from going. Trying to decide now if I should cancel my plans or take a chance.
Now my question - for those that tested positive and then travelled by plane to the US within 3 months after getting it, did you just show your positive test results and said you have the antibodies or did you have to take another test? I am getting mixed answers from others but no one I've talked to in this situation has given me an answer.
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2021.12.02 22:00 ComradeCommissary Export of German plastic waste to Vietnam has been blocked

Export of German plastic waste to Vietnam has been blocked submitted by ComradeCommissary to GenHoChiMinh [link] [comments]

2021.12.02 22:00 sharewithme Word of The Hour: instant

English: instant

  1. closely pressing or impending in respect to time
  2. pressing; urgent
  3. importunate; earnest
Word of The Hour's Annual Survey @
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2021.12.02 22:00 RedditReadsBot Lost City of the Monkey God by Douglas Preston [History](2017)

Lost City of the Monkey God by Douglas Preston [History](2017) submitted by RedditReadsBot to RedditReads [link] [comments]

2021.12.02 22:00 CheLeung CORONAVIRUS/[The Republic of China] buys additional 5 million AZ doses, details booster shot rules - Focus Taiwan

submitted by CheLeung to ChunghwaMinkuo [link] [comments]

2021.12.02 22:00 sparkpointio Keep your enthusiasm. ✨💪

Keep your enthusiasm. ✨💪 #SparkFriday #SparkPoint
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2021.12.02 22:00 japanidol 神激(神使轟く、激情の如く。) - 神奏曲:ライトニング music video

神激(神使轟く、激情の如く。) - 神奏曲:ライトニング music video submitted by japanidol to japanesemusics [link] [comments]

2021.12.02 22:00 Careless-Internal995 Are all popular upcoming open world exploration games coming to PS4 as well?

The best thing about open world exploration games is that you can find tons of them on other platforms than PS4.
Daylight 2, Stay Human and Elden Ring are all set for release in 2022 with their firm grip already secured onto the PlayStation 4.
While other developers offer interesting alternatives like Fractured Veil early access through steam which has been doing quite well lately up until its first beta phase comes out this summer.
submitted by Careless-Internal995 to GammingSpace [link] [comments]